{"id":11797,"date":"2018-04-06T01:26:20","date_gmt":"2018-04-06T01:26:20","guid":{"rendered":"http:\/\/www.lifeandnews.com\/articles\/?p=11797"},"modified":"2018-04-07T01:36:56","modified_gmt":"2018-04-07T01:36:56","slug":"rights-of-the-dead-and-the-living-clash-when-scientists-extract-dna-from-human-remains","status":"publish","type":"post","link":"https:\/\/www.lifeandnews.com\/articles\/rights-of-the-dead-and-the-living-clash-when-scientists-extract-dna-from-human-remains\/","title":{"rendered":"Rights of the dead and the living clash when scientists extract DNA from human remains"},"content":{"rendered":"

Chip Colwell<\/a>, University of Colorado Denver<\/a><\/em><\/span><\/p>\n

The remains of a 6-inch long mummy from Chile are not those of a space alien, according to recently reported research<\/a>. The tiny body with its strange features \u2013 a pointed head, elongated bones \u2013 had been the subject of fierce debate over whether a UFO might have left it behind. The scientists gained access to the body, which is now in a private collection, and their DNA testing proved the remains are those of a human fetus. The undeveloped girl suffered from a bone disease and was the child of an unknown local Atacama woman.<\/p>\n

This study was supposed to end the mummy\u2019s controversy. Instead, it ignited another one<\/a>. <\/p>\n

\n \"\"<\/a>
\n The mummified fetus from the Atacama region of Chile.<\/span>
\n Bhattacharya S et al. 2018<\/a>, CC BY<\/a><\/span>
\n <\/figcaption><\/figure>\n

Authorities in Chile have denounced the research<\/a>. They believe a looter plundered the girl from her grave and illegally took her from the country. The Chilean Society of Biological Anthropology issued a damning statement<\/a>. It asked, \u201cCould you imagine the same study carried out using the corpse of someone\u2019s miscarried baby in Europe or America?\u201d<\/p>\n

As an archaeologist<\/a>, I share in the excitement around how technology and techniques to study DNA are leaping ahead. As never before, the mysteries of our bodies and histories are finding exciting answers \u2013 from the revelation that humans interbred<\/a> with Neanderthals, to how Britain was populated<\/a>, to the enigma<\/a> of a decapitated Egyptian mummy.<\/p>\n

But, I have also closely studied<\/a> the history of collecting human remains for science. I am gravely concerned that the current \u201cbone rush<\/a>\u201d to make new genetic discoveries has set off an ethical crisis.<\/p>\n

Plundering skulls for science<\/h2>\n

We have seen a rush for human remains before. More than a century ago, anthropologists were eager to assemble collections of skeletons<\/a>. They were building a science of humanity and needed samples of skulls and bones to determine evolutionary history and define the characteristics of human races.<\/p>\n

\n \"\"<\/a>
\n Museums were mad for skeletons around the turn of the 20th century.<\/span>
\n Tyne & Wear Archives & Museums<\/a>, CC BY<\/a><\/span>
\n <\/figcaption><\/figure>\n

Researchers emptied cemeteries and excavated ancient tombs. They took skulls from massacre sites. \u201cIt is most unpleasant work to steal bones from a grave,\u201d the father of anthropology, Franz Boas, once grumbled<\/a>, \u201cbut what is the use, someone has to do it.\u201d<\/p>\n

The case of Qisuk, an Inuit man, provides an especially egregious example<\/a>. In 1897, the explorer Robert Peary brought Qisuk and five others to New York from Greenland, so anthropologists could more easily study their culture. Four of them, including Qisuk, soon died of tuberculosis.<\/p>\n

Anthropologists and doctors conspired to fake Qisuk\u2019s burial to trick his surviving 8-year-old son, then dissected the body and defleshed the bones. Qisuk\u2019s skeleton was mounted and hung at the American Museum of Natural History. (It is still disputed<\/a> today whether Qisuk was only stored at the museum or put on public display.)<\/p>\n

By the end of the 20th century, U.S. museums held<\/a> the remains of some 200,000 Native American skeletons.<\/p>\n

These skeletons helped write the American continent\u2019s history and foster an appreciation for Native cultures. Yet the insights gleaned from these gathered remains came at a steep price: Native Americans\u2019 religious freedoms<\/a> and human rights<\/a> were systematically violated. Many Native Americans believe their ancestors\u2019 spirits have been left to wander. Others insist that all ancestors should be afforded honor and their graves should be protected. <\/p>\n

Today, a U.S. federal law<\/a> provides for the return of stolen skeletons. Still, the legacy of these collections will haunt us for generations. Many Native Americans are profoundly distrustful<\/a> of archaeologists. And even after nearly 30 years of active repatriation of human remains, there are still more than 100,000 skeletons<\/a> in U.S. museums. By my estimation, it will take 238 years<\/a> to return these remains at this rate \u2013 if they are ever even returned at all.<\/p>\n

\n \"\"<\/a>
\n Even nondestructive research methods \u2013 like the CT scan about to be performed on this 550-year-old Peruvian child mummy \u2013 raise ethical questions.<\/span>
\n U.S. Navy\/Samantha A. Lewis<\/a>, CC BY<\/a><\/span>
\n <\/figcaption><\/figure>\n

Seeking consent<\/h2>\n

For too long scientists failed to ask basic ethical questions: Who should control collections of human remains? What are the positive and negative consequences of studies based on skeletons? And how can scientists work to enhance, rather than undermine, the rights of the people they study? <\/p>\n

One place to look for answers is the Belmont Report<\/a>. Published in 1979, this was the scientific community\u2019s response to the Tuskegee Study<\/a>. Over the course of 40 years, the U.S. government denied medical treatment to more than 400 black men infected with syphilis, to watch the disease\u2019s evolution. In the aftermath of the resulting scandal, the Belmont Report insisted that biomedical researchers must have respect for people, try to do good as well as avoid harm, and fairly distribute the burdens and benefits of research.<\/p>\n

Although these guidelines were intended for living subjects, they provide a framework to consider research on the dead. After all, research on the dead ultimately affects the living. One way to ensure these protections is to seek informed consent from individuals, kin, communities or legal authorities before conducting studies. <\/p>\n

In some cases consultation may be unwarranted. A skeleton of our earliest human ancestor, at 300,000 years old<\/a>, is a patrimony which all of us could claim. However, a fetus with birth defects that is 40 years old<\/a> \u2013 even one sensationalized as a space alien \u2013 likely has kin and community that should be considered. Between these two extremes lies DNA research\u2019s future of ethical engagement. <\/p>\n

Are humans specimens?<\/h2>\n

In its defense, the journal Genome Research, which published the analysis<\/a> of the Chilean mummy, stated that<\/a> the \u201cspecimen\u201d \u2013 the girl \u2013 did not require special ethical consideration. She does not legally qualify as a \u201chuman subject\u201d because she is not living<\/a>. So disregarding the rights of descendants, the editors only concluded that the controversy \u201chighlights the evolving nature of this field of research, and has prompted our commitment to initiate community discussions.\u201d <\/p>\n

To be sure, such discussions are desperately needed. In the same week that the mummy story hit the news, The New York Times published a profile of Harvard geneticist David Reich<\/a>. The article celebrates how the jump forward in DNA research has led to sudden, luminous advances in our understanding of humanity\u2019s evolution and history. Reich said his dream is \u201cto find ancient DNA from every culture known to archaeology everywhere in the world.\u201d <\/p>\n

\"TheIt is a beautiful aspiration. But both scientists and society now know to ask: Where will this DNA come from? Who will give their consent?<\/p>\n

Chip Colwell<\/a>, Lecturer on Anthropology, University of Colorado Denver<\/a><\/em><\/span><\/p>\n

This article was originally published on The Conversation<\/a>. Read the original article<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

Chip Colwell, University of Colorado Denver The remains of a 6-inch long mummy from Chile are not those of a space alien, according to recently reported research. The tiny body with its strange features \u2013 a pointed head, elongated bones \u2013 had been the subject of fierce debate over whether a UFO might have left […]<\/p>\n","protected":false},"author":44,"featured_media":11798,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[3410],"tags":[2346,2347,644,4298,311,4296,4297,4295,4293,367,1573,4294],"_links":{"self":[{"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/posts\/11797"}],"collection":[{"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/users\/44"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/comments?post=11797"}],"version-history":[{"count":1,"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/posts\/11797\/revisions"}],"predecessor-version":[{"id":11799,"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/posts\/11797\/revisions\/11799"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/media\/11798"}],"wp:attachment":[{"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/media?parent=11797"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/categories?post=11797"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lifeandnews.com\/articles\/wp-json\/wp\/v2\/tags?post=11797"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}